Office of Newborn Screening
The goal of CCHD screening of newborns is to identify those with structural heart defects usually associated with hypoxia in the newborn period that could have significant morbidity or mortality early in life with closing of the ductus arteriosus or other physiological changes early in life. Read our CCHD Implementation Timeline and a statement from the Assistant Bureau Chief Ward Jacox.
Newborn Screening Advocates
- Save Babies Through Screening Foundation, Inc. (SBTS)
A national non-profit organization devoted exclusively to the advocacy of newborn screening.
- March of Dimes (MOD)
A non-profit organization advocating pregnancy and baby health (preventing birth defects, premature birth and infant mortality) and universal newborn screening.
- American Academy of Pediatrics (AAP)
The professional organization for pediatricians and pediatric medical sub-specialists that publishes Newborn Screening Information and Fact Sheets. AAP has an Arizona chapter and provides Healthy Children, a website for parents.
- Arizona Hands and Voices
Hands and Voices is a non-profit parent to apparent support group dedicated to helping families navigate the EHDI system of care.
- CARES Foundation
An advocacy group serving families of babies identified with Congenital Adrenal Hyperplasia supporting universal newborn screening guidelines.