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Office of Newborn Screening
Additional Resources – Newborn Screening Advocates
This index provides a listing of available resources related to newborn screening including guidelines, brochures and forms, process documents, and FAQs. The Arizona listing contains family centered resources, non-profits agencies serving infants with metabolic and genetic disorders, those who are deaf or hard of hearing, as well as intergovernmental agencies serving the special needs of families.
- Newborn Screening and Genetics
- Disorder Information
- Disorder Support Groups
- Newborn Screening Advocates
- Arizona Resources
Newborn Screening Advocates
- Save Babies Through Screening Foundation, Inc. (SBTS)
A national non-profit organization devoted exclusively to the advocacy of newborn screening.
- March of Dimes (MOD)
A non-profit organization advocating pregnancy and baby health (preventing birth defects, premature birth and infant mortality) and universal newborn screening.
- American Academy of Pediatrics (AAP)
The professional organization for pediatricians and pediatric medical sub-specialists that publishes Newborn Screening Information and Fact Sheets. AAP has an Arizona chapter and provides Healthy Children, a website for parents.
- Arizona Hands and Voices
Hands and Voices is a non-profit parent to apparent support group dedicated to helping families navigate the EHDI system of care.
- CARES Foundation
An advocacy group serving families of babies identified with Congenital Adrenal Hyperplasia supporting universal newborn screening guidelines.