| Hospitals: |
Information
from the following data sources are reviewed by the Arizona Birth Defects
Monitoring Program (ABDMP) staff:
- Disease/Diagnosis
Index
- Labor and
Delivery log
- Nursery log
- Newborn
Intensive Care Unit log
- Pediatric
log
|
- Pediatric
Intensive Care log
- Stillborn
log
- Pathology/Autopsy
log
- Ultrasound
Reports
- Cyto-genetic
Reports
|
|
| Hospital Discharge Database: |
The Hospital Discharge Database
contains records of hospital discharges from all reporting hospitals of any size
in Arizona, except for federal hospitals. Hospital discharges of infants and
children with ICD-9-CM codes of reportable birth defects are identified and
sorted by hospital and birth date. This listing serves as an enumeration
of potential cases of infants with a reportable birth defect whose records need
to be abstracted. This list is sent to the medical facility for conversion into
medical record numbers and patient names which are compared with the list
generated from the hospital disease/diagnosis index. |
| Genetic Centers: |
There are two clinical genetic
centers in the state. Each genetic center maintains records on
abnormal amniocentesis, postnatal cytogenetic results, and dysmorphology
conditions. Potential cases are identified and abstracted by the ABDMP staff. |
| Children Rehabilitation Services
(CRS): |
There are four CRS offices in
Arizona. Their records contain follow-up visits, specialist consultations,
and tests and procedures which confirm or deny the conditions diagnosed with
uncertainty from the hospitals. They also show the progress of the defects
and their treatments. The ABDMP staff abstract the records of children
whose diagnostic codes fall within the ABDMP case definition criteria and match
the abstracts on CRS records with the corresponding abstracts from the hospitals
for accuracy and completeness. |
| Vital Records: |
Data from the birth, death, and
fetal death certificates files are used for several purposes: to identify
potential cases of infants with ICD-9 codes corresponding to the ABDMP case
definition; to obtain additional information for cases in the registry
which were not available in other sources; i.e., mother's maiden name and
address; and to ascertain the completeness of the cases in the registry of
Arizona infants with a reportable birth defect. |
