Office of Health Registries
150 N. 18th Ave. Suite 550
Phoenix, AZ 85007
(602) 542-7308
(602) 542-7447 Fax

Resources for Families

Cleft Lip/Palate

Cleft Palate Foundation 1-800-24-CLEFT www.cleftline.org Toll free information and referral service Conferences http://www.spinabifidaassociation.org and educational symposiums Tips on how to work with your insurance company/HMO Tips on how to get other financial assistance You can order an adorable teddy bear with a repaired lip for your child

Craniofacial Foundation of Arizona 1-877-HPY-FACE (479-3223)

http://www.azcranio.com

Provides financial and emotional support to patients with face or head deformities and their families. Its Happy Faces Family Network also links patients and their families to others with similar disorders.

Foundation for Faces of Children (617) 355-8299, 367 Harvard St. #367, Brookline, MA 02446

http://www.facesofchildren.org

• Order a FREE video (Spanish or English): “Understanding Cleft Lip and Palate: A Guide for New Parents”
  
• Information, advice from other parents of children with cleft lip or palate

Wide Smiles  (209) 942-2812, PO Box 5153, Stockton, CA 95205-0153

http://www.widesmiles2.org

Free information on many topics important to parents of children with clefts, including tips on how to word your baby’s birth announcement, terms and definitions, feeding issues and how to prepare your baby for surgery.