Office of Newborn Screening
Information for Parents
Some babies affected with CCHD can look and act healthy at first, but within hours or days after birth they can have serious complications. Pulse oximetry newborn screening is a non-invasive test measuring how much oxygen is in the blood. It can help to identify babies that may be affected with CCHD before they leave the newborn nursery. If detected early, CCHD can often be treated and infants can Read our CCHD Implementation Timeline and a statement from the Assistant Bureau Chief Ward Jacox.
The Newborn Screening Story: How One Simple Test Changed Lives, Science and Health in America, published by the Association of Public Health Laboratories (APHL), covers the origins, science, importance and future of Newborn Screening.
With the right information, you can provide the best start for your baby's health. Did you know that over 90,000 babies are born in Arizona each year? Most of them are healthy but some have a rare and serious disease or hearing loss. Testing and early detection of these disorders is important for all babies. Early treatment can prevent or minimize serious symptoms like growth problems, brain damage and even death. Check out our flyer for an overview of the program in English and Spanish.
Critical Congenital Heart Defects (CCHD) Resources
A few Arizona families have shared their stories about Critical Congenital Heart Defects (CCHD) Read about them to learn more about living with the disease.
Resources for CCHD
NewSTEPS, a program within the Association of Public Health Laboratories (APHL), assists states in the implementation of new disorders by providing a centralized location for tools and resources for public health programs, providers and families. Learn more about this program on their website.
- March of Dimes Congenital Heart Defects and CCHD
- March of Dimes Issue Brief
- March of Dimes Fact Sheet
- Baby’s First Test CCHD
Videos for Parents
- Newborn Screening got Heart Defects using Pulse Oximetry, Annamarie Saarinen
- In Spanish Heart Smart: CCHD Screening for Parents - Children’s Medical Center
- Heart Smart: CCHD Screening for Healthcare Providers
- The Heart of the Matter
You can watch all nine of the anatomically accurate animations below. And if you’re interested in learning more about each condition, click on the title of the defect, which will take you to the condition’s Heart Encyclopedia page.